NAP5 18th May 2021

NAP 5 – Open Health – Wk 1 – Read out

by Guest

As part of the co-creation process of the UK’s fifth National Action Plan for Open Government (NAP5), thematic areas agreed to during the Multistakeholder Forum in March 2021 have been turned into biweekly Working Groups. These Working Groups bring together government policy leads and civil society, and are charged with developing commitments for inclusion in NAP5.

The first NAP5 Open Health Working Group was held on May 6, 2021 at 14:00 BST. The meeting was co-chaired by civil society and government.

Suggested areas produced for further discussion are as follows (broadly grouped):

Public involvement:

  • Public Advisory Group around recovery phase of COVID
  • Public consultation on private data shared with companies
  • Increased public involvement in developing data governance policy
  • Evaluate public involvement programmes and publish the results

 

Education:

  • Campaign on patient’s rights
  • Lessons from COVID/real time data
  • Information campaign on fundamentals and understanding of data

Data standards:

  • Data standards and interoperability
  • Data standards and social prescribing

Linking up:

  • What is accountability – beyond contracting data?
  • Closing siloes between government and charities/technology companies
  • Return of NHS Apps Library or similar
  • Health Research Authority involvement on clinical trial transparency
  • Involvement of ONS on “missing data” and social care
  • API services – NHS identity

Miscellaneous:

  • Patient access to services by population groups
  • Auditing models for AI
  • Miscoded and local data 

Next steps: 

    • The second meeting of the NAP 5 Open Health Working Group will be held on Thursday, May 20th 2021 at 14:00 BST
    • The second meeting is open to all government policy areas or civil society groups with an interest in the Open Health space
  • Attendees of the second meeting are asked to come prepared to discuss the above listed suggestions in greater detail

For additional details or to get involved, please contact: